How do I know that my data is secure?

DKMS treats the collection, processing and storage of the personal data and information of all its registered blood stem cell donors, supporters and stakeholders with the utmost care, consideration, seriousness and responsibility. We are committed to full compliance with all relevant data protection legislation and guidance, including the UK General Data Protection Regulation.

• We work to clear and robust data and information standards and security protocols to ensure that your data is accurate, safe and secure.
• We process only the data and information we need, store it securely, ensure it is accessed or handled only by those staff or third parties that need to see and retain and dispose of it in line with agreed data retention schedules, based upon need for the data or national and international regulation.
• We pseudonymise any data that is used in the search and matching process for blood stem cell donation, including HLA tissue characteristics, age, biological sex, etc. This means that doctors and transplant centres searching the database for a matching donor are only able to see this information.

Where we work with third parties for the purposes of fulfilment, regulation or the search and match process for national and international stem cell donations, then we work with only trusted partners and under legally binding and regulatory compliant data sharing agreements. We will never sell your data to third parties.

For more information on how we look after your personal data, please see our Data Protection Policy and our Privacy Notice.